I heard from the gastro today. The pathologist in town who looked at Katie's samples thought there was some inflammation, indicating celiac's disease, but wasn't certain. So they sent the sample to the Mayo Clinic. The pathologist there doesn't think she has celiac's.
Okay.
Dr was sure to remind me that this is really kind of inconclusive since she doesn't consume any wheat.
Okay.
Asked what we should do about the fact that wheat and dairy make her vomit, scream and stop sleeping. Apparently it's up to us whether or not to feed it to her. Go for it, don't go for it, whatever.
Okay.
So we learned what from all this? Oh that's right...nothing.
I'm on my third drink.
Subscribe to:
Post Comments (Atom)
5 comments:
so sorry, Theresa. i wish there was something we could do. we will keep praying.
--beth
ugh. that sucks. i hope someone can figure something out and soon.
That sucks Theresa. Sounds like you're getting about as far as I did with Christopher when he was a baby and couldn't poop right. He's 7 and we're still dealing with it and the docs still don't tell us anything!
Didn't they do a straight allergy test? I mean, could she just be allergic, and it not be something like Celiacs?
By the way, my commissary has gluten-free wheat fairly cheap. I'll get you some and bring it by if you want! let me know!
Did you get my email? I emailed you back! and texted you too!
Oh goodness...I am so frustrated for you!! I hope you get some answers soon :)
Hang in there Mama...the drinks will help!
One of the frustrating things about healthcare and being more informed is the realization that it's not an exact often. I hate not knowing, and whine and mope about it often. In my more rational moments I try to see what I do know.
You know there is information that could be celiac, it's up to you to decide what to do with that information and how to best put it to use.
I'm sorry you are going down the "not typical, no clear cut answer on how to proceed" road. She's lucky to have you to muddle through all of this with her.
Post a Comment